Information Sites and Support Groups
Support Organizations/Groups
Rare Connect
Global Genes
The National Ataxia Foundation
Ataxia Support Group
Ataxia UK
Information Sites
NIH - Genetics Home Reference
https://ghr.nlm.nih.gov/condition/dentatorubral-pallidoluysian-atrophy#
OMIM® - Online Mendelian Inheritance in Man
https://www.omim.org/entry/125370
National Centre for Biotechnology-Gene Review
https://www.ncbi.nlm.nih.gov/books/NBK1491/
GARD - Genetic and Rare Diseases Information Centre
https://rarediseases.info.nih.gov/diseases/5643/dentatorubral-pallidoluysian-atrophy
Access DRPLA Resources and Support Groups
DRPLA resources and support groups can help you gain a better understanding of this progressive brain disorder. At CureDRPLA, we connect patients, families, clinicians and researchers to further DRPLA research and work towards a treatment for DRPLA. You can join our community by going to Rare Connect. For more information about our community, get in touch with us.
Thank you for visiting our site. Please be in touch with us personally to share your story or any relevant information. Together, we may be able to develop a better understanding and potential treatments or a cure for DRPLA.
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