If you live in the UK and you or someone in your family has DRPLA, you can use the Ataxia UK Helpline services to access information, advice and support.
The Helpline is a resource and support hub for people who are affected by ataxias. As well as providing support and information around diagnosis, treatment and living with ataxia, there is a range of other issues they can help with, including:
- Benefits
- Housing
- Finances
- Care needs
- Health needs
- Mental health
- End of life care
- Aid and adaptations
- Transport and travel
- Employment
- Education
- Accessing Grants
While the people on the Helpline are not experts on DRPLA, they are well placed to provide advice on the topics listed above. They also have an advocacy service for anyone that needs a little extra support with any of these issues. However, if your questions are very specific to DRPLA symptoms or management, you may prefer to reach out to CureDRPLA directly.
If you would like to find out more about the Helpline, or talk to a member of the team, please get in touch by calling 0800 995 6037 or by emailing help@ataxia.org.uk.
The Helpline is open Monday to Thursday 10.30am until 2.30pm UK time.
For those outside the UK:
If you do not live in the UK and would like support in these areas, please contact CureDRPLA at info@curedrpla.org. We might be able to signpost you to other organizations or resources that are tailored to your country and needs.