Silvia Prades is going to Cardiff with Dr Hector Garcia-Moreno and Ola Volhin, who work at UCL on the DRPLA Natural History and Biomarkers Study. It will be a great opportunity to meet us and also, to get to know other families that are affected by DRPLA.
Ataxia UK's Virtual Annual Conference is taking place on October 7th and 8th, 2022. For the third year in a row, Dr. Silvia Prades will give a DRPLA research update talk, followed by a Q&A session with Dr. Hector Garcia-Moreno. This event will be online and it...
We are launching three new sections on our website: News, Events and Announcements! Under News we will publish articles about CureDRPLA’s funded research, the latest research that is being published, interviews with researchers and caregivers, and much...
Access the replay here: https://youtu.be/QyqgaNEnug8 Voice of the Patient Report The Voice of the Patient Report for Polyglutamine Ataxias and DRPLA is now available to download. This report summarizes information from...