The DRPLA Natural History and Biomarkers Study has three main objectives: Researchers would like to characterize the natural history of DRPLA, that is to say, how subjects with DRPLA change over time. This study will identify genetic factors...
Junko Shiozawa is our Advisory Board Member and her daughter has DRPLA. In May, Junko went to Japan to recruit more participants for the CureDRPLA Global Patient Registry. Although DRPLA is more common in Japan, we only have 7 Japanese participants in our patient...
The main goal of CureDRPLA is to advance DRPLA research and work towards a treatment for this condition, and this is what the conference was about! We had a few presentations showcasing the research that has taken place since we started this journey in 2019. All...
CureDRPLA hosted the first-ever DRPLA Research Conference in Boston on May 11, 2022! 24 people attended and 7 more were on Zoom. Participants included: Scientists and medical professionals from Western Washington University (USA), New York University (USA), Boston...
Last week CureDRPLA's team met for the first time after +2 years of working together remotely!!! We met for the 2022 CureDRPLA Research Conference in Boston (USA), which was a huge success! Next week we will post an article summarising the conference and the main...