We are co-hosting a couple of webinars on DRPLA with the National Ataxia Foundation (NAF) to reach as many people as possible. We encourage anyone with DRPLA, family members, caregivers and friends to join to learn more. The “All About DRPLA” webinar is taking place...
We recorded our annual update so you can watch it at your own pace. It includes updates on our organization, N-of-1 trials, DRPLA Natural History and Biomarkers Study, Patient Registry and other relevant news and projects.
This year we are raising awareness about DRPLA. Let’s come together to share our 5-Year Progress Report, which includes:✔️ A comprehensive summary of DRPLA✔️ Highlights of research projects funded by CureDRPLA✔️ Updates on efforts to advance treatments for...
Darren Monckton is a Professor of Human Genetics at the University of Glasgow and he will be advising CureDRPLA on scientific matters. Prof Monckton brings years of experience in research for conditions like Huntington’s disease and Myotonic Dystrophy. His expertise...
CureDRPLA was incorporated as a non-profit foundation in November 2019 by Paul and Andrea Compton. We are honoring 5 years of CureDRPLA with this impact report. In this report you will find a summary of our achievements to date and our goals for the next 5...