You can find it here. Send it to friends, family, caregivers and medical professionals!
Silvia will present a poster with data collected from the 33 participants. It will address questions like ‘What is the average age of onset?’ ‘What are the most bothersome symptoms?’ ‘How many patients experience epilepsy?’ and many more.
Prof. Paola Giunti at University College London is recruiting participants for this study.
CureDRPLA advocates are going to the International Congress for Ataxia Research in Dallas, November 1-4
Andrea Compton, Silvia Prades and Julie Greenfield are going in person to learn about the latest research and network with researchers and industry representatives
Dr. Claire Miller at New York University Langone Health is recruiting participants for this study. Please read this flyer for more information.