To better understand upper limb function in a way that is meaningful to people with DRPLA, researchers included a novel approach to the DRPLA Natural History and Biomarkers Study. Dr Louise Corben from Murdoch Children’s Research Institute (Australia) and her team developed a spoon with a sensor that logs movements of the hand and upper limb. The task consists of picking up the spoon, transporting it to the mouth and back, and releasing it back on to the table. By using this spoon, researchers aim to establish what upper limb movement features are unique to DRPLA, and also establish features that reflect the natural history of DRPLA and capture possible change over time.
Tracking upper limb function in DRPLA
