Ataxia UK is a non-profit organisation that provides support to people with all types of ataxias, not just DRPLA. Ataxia UK organises virtual activities that may interest the DRPLA community:
All About Ataxia
The All About Ataxia is an information seminar organised by Ataxia UK that gives anyone affected by ataxia (patients, carers/family members) information about the clinical and practical implications of living with ataxia. They explain what is known about ataxia, how it may progress, and what can be done to mitigate its effects.
The next seminar is delivered online via Zoom on 25th March 2025 from 10AM to 2PM UK time. To find our more and register visit this page.
Chair Pilates
Join Ataxia UK on Tuesday 11th March 11:30-12:30PM UK time for Chair Pilates with Sonia Forde. This session will combine a variety of seated exercises that will help with mobility and posture.
Mindfulness session
Their next mindfulness session with Lucy Holland will be on Friday 25th April from 13:00 to 14:00PM UK time. Lucy will take you through a range of techniques such as body scans and meditation to help you manage everyday stresses with a calmer mind. There are limited places for this session, so don’t delay in signing up.
Register for any of these sessions here.