by Silvia Prades | Mar 23, 2026 | News Articles
Updates from conferences in the United States Prof Melissa Barker-Haliski and Dr Joanna Korecka-Roet, together with their teams and collaborators, who presented a poster entitled “Investigational ASOs for Disease Modification and Seizure Control in DRPLA” at the...
by Silvia Prades | Mar 16, 2026 | News Articles
DRPLA is diagnosed with a genetic test that checks whether a person has the specific change in their DNA that causes the condition. In DRPLA, this test looks for a section of the ATN1 gene that repeats the letters CAG many times. If someone has 48 or more CAG repeats,...
by Silvia Prades | Mar 11, 2026 | News Articles
Prof Jeff Carroll has been our longstanding Scientific Advisor since CureDRPLA was founded and after seven years in the role he has resigned to pursue new opportunities. While we will miss Jeff on our team, we are grateful for the time he spent with us and for the...
by Silvia Prades | Feb 9, 2026 | News Articles
If you live in the UK and you or someone in your family has DRPLA, you can use the Ataxia UK Helpline services to access information, advice and support. The Helpline is a resource and support hub for people who are affected by ataxias. As well as providing support...
by Silvia Prades | Jan 22, 2026 | Announcements
We recorded our annual update so you can watch it at your own pace. It includes updates on our organization, N-of-1 trials, DRPLA Natural History and Biomarkers Study, Patient Registry and other relevant news and projects.
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