by Silvia Prades | Dec 12, 2025 | News Articles
Did you miss the meeting on November 12? We recorded the presentation so you can watch it at your own pace. The video is available on our YouTube channel. This talk includes updates on our organization, N-of-1 trials, DRPLA Natural History and Biomarkers Study,...
by Silvia Prades | Oct 30, 2025 | News Articles
The most comprehensive description of symptoms and findings from clinical tests, brain scans, and blood tests from people living with DRPLA has been published by Dr Shi-Rui Gan and his collaborators based in China. They enrolled 116 people living with DRPLA across...
by Silvia Prades | Oct 2, 2025 | Events
In this session, Dr Silvia Prades will update on the findings from the latest research projects. Followed by a Q&A session with Dr Yael Shiloh-Malawsky from the University of North Carolina and Dr Hector Garcia-Moreno from University College London, two...
by Silvia Prades | Sep 25, 2025 | News Articles
Did you know that September 25 is International Ataxia Awareness Day? It takes place on September 25 of each year to increase public knowledge and understanding of all types of ataxia. On this International Ataxia Awareness Day (IAAD) we are encouraged by all the...
by Silvia Prades | Sep 19, 2025 | Announcements
This year we are raising awareness about DRPLA. Let’s come together to share our 5-Year Progress Report, which includes:✔️ A comprehensive summary of DRPLA✔️ Highlights of research projects funded by CureDRPLA✔️ Updates on efforts to advance treatments for...
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