by Silvia Prades | Jul 27, 2022 | Announcements
Since November 2019 we have funded $3.3 millions in DRPLA research. Our main goal is to find a treatment for this condition.
by Silvia Prades | Jul 13, 2022 | News Articles
On Monday, July 11, Andrea Compton and Silvia Prades met with Maja Jefferies. Maja’s son, Ryan, is 20 years old and he has DRPLA. It was enlightening to hear Ryan’s story and Maja’s efforts to fight this disease. On Tuesday, Andrea and Silvia...
by Silvia Prades | Jun 30, 2022 | Announcements
The North Carolina site has started recruitment and you can find the study flyer here.
by Silvia Prades | Jun 30, 2022 | News Articles
The DRPLA Natural History and Biomarkers Study has three main objectives: Researchers would like to characterize the natural history of DRPLA, that is to say, how subjects with DRPLA change over time. This study will identify genetic factors...
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