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Share our new CureDRPLA pamphlet to raise awareness of DRPLA

by Silvia Prades | Oct 20, 2022 | Announcements

You can find it here. Send it to friends, family, caregivers and medical professionals!

We are presenting a poster at ICAR about the CureDRPLA Global Patient Registry

by Silvia Prades | Oct 5, 2022 | Announcements

Silvia will present a poster with data collected from the 33 participants. It will address questions like ‘What is the average age of onset?’ ‘What are the most bothersome symptoms?’ ‘How many patients experience epilepsy?’ and many more.

DRPLA Natural History and Biomarkers Study: the London site is now recruiting!

by Silvia Prades | Oct 1, 2022 | Announcements

Prof. Paola Giunti at University College London is recruiting participants for this study.

CureDRPLA advocates are going to the International Congress for Ataxia Research in Dallas, November 1-4

by Silvia Prades | Sep 28, 2022 | Announcements

Andrea Compton, Silvia Prades and Julie Greenfield are going in person to learn about the latest research and network with researchers and industry representatives

DRPLA Natural History and Biomarkers Study: the New York site is recruiting!

by Silvia Prades | Aug 31, 2022 | Announcements

Dr. Claire Miller at New York University Langone Health is recruiting participants for this study. Please read this flyer for more information.
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Recent Posts

  • Presenting DRPLA research projects at conferences
  • Information on genetic testing  
  • Wishing Prof Jeff Carroll every success on his next chapter
  • The Ataxia UK Helpline services are available for people with DRPLA
  • Watch the recording of the 2025 DRPLA Research Update

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