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A report from Junko Shiozawa’s trip to Japan

A report from Junko Shiozawa’s trip to Japan

by Silvia Prades | Jun 22, 2022 | News Articles

Junko Shiozawa is our Advisory Board Member and her daughter has DRPLA. In May, Junko went to Japan to recruit more participants for the CureDRPLA Global Patient Registry. Although DRPLA is more common in Japan, we only have 7 Japanese participants in our patient...
Outcomes from the 2022 CureDRPLA Research Conference

Outcomes from the 2022 CureDRPLA Research Conference

by Silvia Prades | Jun 1, 2022 | News Articles

The main goal of CureDRPLA is to advance DRPLA research and work towards a treatment for this condition, and this is what the conference was about! We had a few presentations showcasing the research that has taken place since we started this journey in 2019. All...

2022 CureDRPLA Research Conference 

by Silvia Prades | May 25, 2022 | Announcements

CureDRPLA hosted the first-ever DRPLA Research Conference in Boston on May 11, 2022!
2022 CureDRPLA Research Conference Participants

2022 CureDRPLA Research Conference Participants

by Silvia Prades | May 25, 2022 | News Articles

CureDRPLA hosted the first-ever DRPLA Research Conference in Boston on May 11, 2022! 24 people attended and 7 more were on Zoom.  Participants included: Scientists and medical professionals from Western Washington University (USA), New York University (USA),...

CureDRPLA’s team meets in person for the first time

by Silvia Prades | May 20, 2022 | Announcements

Last week CureDRPLA’s team met for the first time after +2 years of working together remotely!!! We met for the 2022 CureDRPLA Research Conference in Boston (USA), which was a huge success! An article summarising the conference and the main takeaways will be published...
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Recent Posts

  • Access the recordings of the latest DRPLA webinars
  • Speech therapy & voice banking services from Ataxia UK
  • Upcoming webinars on DRPLA with the National Ataxia Foundation
  • Presenting DRPLA research projects at conferences
  • Information on genetic testing  

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