You can find it here. Send it to friends, family, caregivers and medical professionals!
Share our new CureDRPLA pamphlet to raise awareness of DRPLA
read more
Announcements
We are presenting a poster at ICAR about the CureDRPLA Global Patient Registry
Silvia will present a poster with data collected from the 33 participants. It will address questions like ‘What is the average age of onset?’ ‘What are the most bothersome symptoms?’ ‘How many patients experience epilepsy?’ and many more.
DRPLA Natural History and Biomarkers Study: the London site is now recruiting!
Prof. Paola Giunti at University College London is recruiting participants for this study.
CureDRPLA advocates are going to the International Congress for Ataxia Research in Dallas, November 1-4
Andrea Compton, Silvia Prades and Julie Greenfield are going in person to learn about the latest research and network with researchers and industry representatives
DRPLA Natural History and Biomarkers Study: the New York site is recruiting!
Dr. Claire Miller at New York University Langone Health is recruiting participants for this study. Please read this flyer for more information.