Since DRPLA is more prevalent in Japan, CureDRPLA has made it a priority to build connections with the scientific and clinical community there. Junko Shiozawa, Advisory Board Member, has played a key role in building a community of Japanese individuals affected by...

In this video we interviewed Aliza Ben-Varon, a former Graduate Student working with Dr Jeff Carroll at the University of Washington. This research group has done a fantastic job in characterizing a mouse model that mimics the human form of DRPLA. Using genetic...

Nissan Chemical Corporation and Sanwa Kagaku Kenkyusho Co., Ltd., two Japanese companies, announced on April 4 their agreement to co-develop SK-2407/SN-001, which is a pre-clinical antisense oligonucleotide (ASO) candidate identified through their collaboration for...

Ataxia UK is a non-profit organisation that provides support to people with all types of ataxias, not just DRPLA. Ataxia UK organises virtual activities that may interest the DRPLA community: All About Ataxia The All About Ataxia is an information seminar organised by...

CureDRPLA is honored to announce that the American Epilepsy Society, another non-profit organization, has awarded funding to a research project to better understand epilepsy in DRPLA cell lines and mouse models. Epilepsy is very common in people with juvenile-onset...