CureDRPLA Global Patient Registry is available!

What is DRPLA?

Dentatorubral-pallidoluysian atrophy, commonly known as DRPLA, is a progressive brain disorder that causes involuntary movements, emotional problems, and a decline in thinking ability. The average age of onset of DRPLA is 30 years, but this condition can appear anytime from infancy to mid-adulthood.

What is CureDRPLA?

CureDRPLA is a US based non-profit founded by Paul and Andrea Compton. Paul and Andrea have a son that was diagnosed with DRPLA in August 2018. The mission of CureDRPLA is to connect families, physicians and scientific investigators to further DRPLA research and work towards a treatment for DRPLA. This webpage was created to find others that have this condition and are interested in finding a cure.

CureDRPLA
Global
Patient
Registry

The CureDRPLA Global Patient Registry is a worldwide registry of DRPLA patients.

This registry gathers the demographic and clinical information on DRPLA patients from across the globe.  By collecting information on all DRPLA patients, the CureDRPLA Global Patient Registry will be a powerful resource for research and will enhance opportunities for treatment development.

Patient & Caregiver

Click below to find out what CureDRPLA has done and what we are currently doing to find to a treatment for DRPLA.  You will also find online resources and support organizations for DRPLA as well as YouTube channels specifically focused on DRPLA.

Click below to find out what CureDRPLA has done and what we are currently doing to find a treatment for DRPLA.  You will also find online resources and support organizations for DRPLA as well as YouTube channels specifically focused on DRPLA.

Patient &
Caregiver

Researcher
& Industry

CureDRPLA is investing in a number of projects in hopes of rapidly developing novel therapeutics for DRPLA.  Information on funding opportunities, a list of our preclinical projects as well as other efforts can be found here.

Latest

CureDRPLA’s team meets in person for the first time

Last week CureDRPLA’s team met for the first time after +2 years of working together remotely!!! We met for the 2022 CureDRPLA Research Conference in Boston (USA), which was a huge success! An article summarising the conference and the main takeaways will be published...

We are improving our website

We are launching three new sections on our website: News, Events and Announcements!

News

CureDRPLA’s team meets in person for the first time

CureDRPLA’s team meets in person for the first time

Last week CureDRPLA's team met for the first time after +2 years of working together remotely!!! We met for the 2022 CureDRPLA Research Conference in Boston (USA), which was a huge success! Next week we will post an article summarising the conference and the main...

read more

We are improving our website

We are launching three new sections on our website: News, Events and Announcements!  Under News we will publish articles about CureDRPLA’s funded research, the latest research that is being published, interviews with researchers and caregivers, and much...

read more
join drpla

Join Our DRPLA Community Today

At CureDRPLA, we connect patients, families, clinicians and researchers to further DRPLA research and work towards a treatment for DRPLA. You can join our community by going to Rare Connect. For more information about our community, get in touch with us.