CureDRPLA is currently funding a Natural History and Biomarkers Study, aimed at gaining a deeper understanding of the progression of DRPLA over time, as well as identifying any genetic factors and markers that might predict disease progression. This study will provide useful information to support the design and conduct of clinical trials in the future.
For those who have never participated in a research study, it can be challenging to envision what to expect. Furthermore, it is worth noting that each study is unique, demanding varying levels of commitment.
To provide you with a firsthand perspective, we are delighted to share a testimonial from a family that participated in the DRPLA Natural History and Biomarkers Study. Hearing directly from Kerri Mackey will offer a glimpse into what the experience can be like:
If you are interested in finding more about the study or participating, visit this page or contact us by email (firstname.lastname@example.org).