CureDRPLA awards DRPLA Centers of Excellence accreditations to those neurologists who have experience in DRPLA care and commit to supporting our work. In addition to providing expert clinical care and identifying the various needs of those diagnosed with DRPLA, this initiative also aims to help families more easily identify clinical experts in DRPLA for their healthcare needs.
Once a center has been accredited, we reach out each year to gather an update on how their clinic is progressing and whether the accreditation has had an impact. It was encouraging to see that our accreditations may already be making a difference:
- Eight more people with DRPLA were diagnosed over the last year by Dr Gan at The First Affiliated Hospital in China.
- Two additional families with DRPLA visited Dr Jee-Young Lee’s and Dr Ryul Kim’s clinic at the SMG-SNU Boramae Medical Center in South Korea. They are also seeing an increase in contacts from physicians at other hospitals who want to refer people with DRPLA to this center.