by Elisa Martelletti | Sep 16, 2026 | News Articles
Advancing research in rare conditions like DRPLA is only possible when people work together. The DRPLA Natural History and Biomarkers Study (NHBS) is a great example of how researchers, clinicians, families, and patient organizations across the world joined forces to...
by Elisa Martelletti | Aug 7, 2026 | News Articles
Being recognized as a DRPLA Centre of Excellence is about much more than a title. In addition to providing expert clinical care and identifying the various needs of those diagnosed with DRPLA, the Centers must have an ongoing interest in research into DRPLA. Over the...
by Elisa Martelletti | Aug 7, 2026 | News Articles
Junko Shiozawa, Advisory Board Member for CureDRPLA, has played an important role in bringing together Japanese people living with DRPLA and their families. Through her leadership within the DRPLA Family Network (DFN), she continues to strengthen the partnership...
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