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DRPLA Natural History and Biomarkers Study: the North Carolina site is recruiting!

by Silvia Prades | Jun 30, 2022 | Announcements

The North Carolina site has started recruitment and you can find the study flyer here. 
We are funding a natural history study for DRPLA!

We are funding a natural history study for DRPLA!

by Silvia Prades | Jun 30, 2022 | News Articles

The DRPLA Natural History and Biomarkers Study has three main objectives: Researchers would like to characterize the natural history of DRPLA, that is to say, how subjects with DRPLA change over time. This study will identify genetic factors...
A report from Junko Shiozawa’s trip to Japan

A report from Junko Shiozawa’s trip to Japan

by Silvia Prades | Jun 22, 2022 | News Articles

Junko Shiozawa is our Advisory Board Member and her daughter has DRPLA. In May, Junko went to Japan to recruit more participants for the CureDRPLA Global Patient Registry. Although DRPLA is more common in Japan, we only have 7 Japanese participants in our patient...
Outcomes from the 2022 CureDRPLA Research Conference

Outcomes from the 2022 CureDRPLA Research Conference

by Silvia Prades | Jun 1, 2022 | News Articles

The main goal of CureDRPLA is to advance DRPLA research and work towards a treatment for this condition, and this is what the conference was about! We had a few presentations showcasing the research that has taken place since we started this journey in 2019. All...

2022 CureDRPLA Research Conference 

by Silvia Prades | May 25, 2022 | Announcements

CureDRPLA hosted the first-ever DRPLA Research Conference in Boston on May 11, 2022!
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Recent Posts

  • Presenting DRPLA research projects at conferences
  • Information on genetic testing  
  • Wishing Prof Jeff Carroll every success on his next chapter
  • The Ataxia UK Helpline services are available for people with DRPLA
  • Watch the recording of the 2025 DRPLA Research Update

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