by Silvia Prades | Jan 22, 2026 | News Articles
CureDRPLA awards DRPLA Centers of Excellence accreditations to those neurologists who have experience in DRPLA care and commit to supporting our work. In addition to providing expert clinical care and identifying the various needs of those diagnosed with DRPLA, this...
by Silvia Prades | Jan 13, 2026 | News Articles
In the past, we have reported that the US is further ahead with individualized genetic therapies and N-of-1 trials for ultra rare conditions such as DRPLA because established systems and frameworks enable this work. It is encouraging to see other countries, such as...
by Silvia Prades | Dec 12, 2025 | News Articles
Did you miss the meeting on November 12? We recorded the presentation so you can watch it at your own pace. The video is available on our YouTube channel. This talk includes updates on our organization, N-of-1 trials, DRPLA Natural History and Biomarkers Study,...
by Silvia Prades | Oct 30, 2025 | News Articles
The most comprehensive description of symptoms and findings from clinical tests, brain scans, and blood tests from people living with DRPLA has been published by Dr Shi-Rui Gan and his collaborators based in China. They enrolled 116 people living with DRPLA across...
by Silvia Prades | Oct 2, 2025 | Events
In this session, Dr Silvia Prades will update on the findings from the latest research projects. Followed by a Q&A session with Dr Yael Shiloh-Malawsky from the University of North Carolina and Dr Hector Garcia-Moreno from University College London, two...
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